Showing posts with label accident. Show all posts
Showing posts with label accident. Show all posts

Saturday, June 8, 2013

On Turning 45 & a Year Later


We acknowledged the one-year mark of Michael’s accident on May 15th. It doesn't sound right to say we celebrated it, or for that matter, that we mourned it. It just was. And it was acknowledged.

Michael took the day off and we spent it together as a family of five. We delivered baked goods to some of our haunts from that time in our lives....Baylor Institute for Rehabilitation, brain injury floor; BIR's inpatient rehab floor; and our trauma surgeon’s office. There wasn't a total rhyme or reason for where we stopped by this time around, but it felt good to go by and say thank you, again. Afterwards we talked of how "at home" Michael felt at BIR, and how I felt some anxiety about being there, although I hadn't expected to. A reminder that although we traveled this path together, our experience was still different. A few weeks out now, I am not sure that we will feel the need to go back again. As it was, there were only a few people we recognized from our time there, and they were the ones we wanted to see, and for them to see Michael, so whole again. Next year we will take some food to the ICU families....or maybe we won't feel compelled to acknowledge the day in quite the same way we did this year.



We finished the day with Michael riding in the Ride of Silence for the first time, and no doubt with more meaning and emotion than it could have had before. My mom, the kids and I were there too, and it was a deep, meaningful way to end the day.




Seeing Day 365 brought closure, even more than I had anticipated. I hoped it might, but was afraid to put too much stock in that possibility. Instead we went into it wanting to acknowledge it, and get from it what we could, without a whole lot of expectations. I am glad for that. It made it even better I think. And now, again a few weeks out, I think it lifted some invisible weight Michael and I were both carrying around with us. I feel like I have sighed with some relief I didn't even realize I needed.

And at the end of the day, it was a day of gratitude. It's difficult to express the depths of gratitude we feel to get the chance to see this day come.


Friday was my 45th birthday, and memories of where we were, and what was happening, this time last year crept in. We really are nearing the end of "the firsts", but this was one we needed to get through and feel what we needed to. The feelings were all good ones, even if I am a little shocked that I could possibly be 45 years old. I am now the same age my mother was when Chance was born and she became a grandmother. It didn't seem like that big of a deal back then, but being on this end of things, I cannot even imagine it!! It's pretty remarkable to look back on four and a half decades of life, and perhaps even more so, with a great deal of respect for each and every moment that I have lived.

I sometimes find myself praying for calm, for a time without trials set in my path. But the truth is, without the trials, the beauty of life, and the blessings sometimes hidden within those moments, would never be as sweet, nor as profound.

So I am grateful.

For each and every moment of these 45 years I have had the privilege of living.

For every wrinkle.

For every gray hair.

Hello 45... ...let's do this!!

Monday, May 13, 2013

The First Ride To Work


While he has been riding for a while now, today Michael rode all the way to work for the first time since the accident.
Starting out way too early for me!!


An incredible milestone, even more quickly than I thought possible. And let’s face it, I was unnaturally optimistic about this recovery!!

I have gone back and read that initial post I wrote, just two days into this journey, and can see in hindsight that I was WILLING him to be okay. I actually have laughed at myself a little for being so sure about things, and then amazed at how right I actually was. I wrote:

We are SO lucky......

as always, he was wearing his helmet and it no doubt saved his life.

the 150+ miles of riding every week for the last 7 years is going to make his ability to recover from this devestation possible.  I am convinced of it, even if the doctors don't seem so sure.

his bull headed stubborness and obsession with riding will make this recovery possible.  The doctors just don't know who they are dealing with yet.

we have the most amazing friends, family & work-family who are literally holding us up through this time.

The doctors just don't know who they are dealing with yet.

I do know my man.


I honestly didn’t even feel a twinge of worry as he walked out the door this morning.  Granted, it was painfully early and I was only half awake, but the truth is, I was happy to see him on his way. I prayed for safety, and prayed he would feel good as he took on this challenge, but knew in my heart of hearts, this is EXACTLY what he is supposed to be doing.

"Lucy" (short for Lucinda from Don Quixote), sitting exactly where she should be this morning

 May is National Bike Month, and this week is "Bike to Work" week. You can read more about it here......http://www.bikeleague.org/programs/bikemonth/

Monday, May 6, 2013

Another Milestone (of the Bikey kind)



Saturday, thanks to some very special people, Michael’s new bike was handed over to start its new life in the McNair household. She is oh so pretty.


Some of those special people met the family at Dallas Bike Works to surprise the old man, and we did. In an awesome, amazing kind of way!!


A quick ride around the parking lot brought a BIG smile.

After formalities were taken care of, we were all off to the house for a little celebratory cook out!!  As I shared on FB, this here…..



THIS is how a backyard should look!!


It was a lovely evening that included a few jaunts out on the new wheels with friends….there is nothing better!!!



Sunday, a quick run to the store for some last minute things needed for the second party of the weekend (I had a Lia Sophia jewelry party), became another excuse to get out on the new wheels. He is a happy man!!



Another example of how amazing the Dallas cycling community really is. We are so blessed to know them and be a part of this group of people.


Monday, April 29, 2013

WC Day 29: It’s Always Something…..


Hospital prep again!! Argh….why didn’t I make notes when getting Madison ready a couple of weeks ago?

This time, Chance is going inpatient.  Not sure if you all remember, but he and Abby had an appointment with our GI doctor when Madison was inpatient, and from that appointment, tomorrow’s admission is taking place. After some talk about where we go from here in dealing with Chance’s large bowel dysmotility, it was decided that we need to do Colonic Manometry again, and see exactly where things stand. So at least this admission is a little more “planned”, as if that somehow makes it less stressful, right!?

To do the Colonic Manometry, we need to admit him the day before and do a mega clean out while supporting him with IV fluids. Wednesday morning he will go under anesthesia and they will place the probes needed for the testing. Because anesthesia can slow intestines down, we then need to wait till the following morning (Thursday) before doing the testing. The testing Thursday will take a big chunk of the day, but then we should be discharged and head home.

This testing is not fun from start to finish…..clean outs suck; anesthesia makes Mom worry; laying flat on your back and not being able to get out of bed for the better part of 2 days has it’s issues (although I wouldn’t mind some forced bed rest sometimes); and getting through the testing itself is not pleasant.

I am proud of my son.

This was HIS decision, and he made it even knowing what it means. This will be his third time getting through the testing. He knows the information is invaluable, and that we need it to guide treatment decisions, so he is going into it with a good attitude.

He is a pretty awesome young man.

Now, in other news…..

Madison is continuing to heal like a (piggy) super star!! My mom (who is again saving our butt by being here with the rest of the kiddo’s while I am away) will bring Madison to me Wednesday for her 3 weeks post op check up. This latest dressing allows for us to see more of what is going on there, and as of Saturday, I swear it’s all but healed!! Our other big news on the Madi front is that my amazing daughter learned how to do her own dressing changes, even with some changes that made it a little more complicated, so she was able to go out with her siblings and visit my mom and dad for a few days!! I can and do a whole lot of medical care around here, and mostly with pleasure, but really do not like wound care. Not sure why, but it is one thing that will get to me faster than anything else…LOL. So for Miss Madison to be able to do it herself, just means it’s not all on me, and I like that….a lot!!

Miss Abby is my favorite child right now, with little drama (well the medical kind) and lots of hugs for her tired mom. She completed a painting for Wish Night last week and did an amazing job. We cannot wait to see how it does at the auction. I may have to pay her to keep being drama free for me ;-)

And finally, Michael, my love.

He, like Abby, is mostly drama free, medically speaking. Also like Abby, drama in general still sometimes happens. I still love him though ;-) He took a nice long ride yesterday with friends, and thoroughly enjoyed himself, even if the ride was cut a little short for him due to ostomy appliance issues. A dear friend wrote about the ride on bike forums and said it so well, I am going to quote him here…..

"The old worn out saw about a picture being worth 1000 words would apply to that photo above. I bet there are 1000 people who if they saw that picture would smile from ear to ear. All day. All week.

That's what courage looks like. I could never do that. Michael McNair can. He did. That takes some kind of special spirit to overcome adversity and soldier on. It was 11 months ago that through the large bay windows of Baylor's ICU unit that I looked down on the spot along the Wetland Cells near the Freedman's Town of Joppa, Texas where we were yesterday. Michael was on life support in the worst way, on a breathing machine and in a coma after being hit by a car while riding his bike. Month and a half in a coma. With all the noise of the machines keeping him alive, frankly I thought this day would never come. But it did. The sun never shown brighter. The wind never calmer. The wildflowers in full bloom."

It certainly made me smile from ear to ear…..thanks for sharing this, Ben.

So, a first ride back down to some his old stomping grounds. 

Another first since the accident happened over the weekend.....all three of our children were gone from home, overnight, at the same time, for the first time since last spring (at least). Yes, Michael and I enjoyed some child free time together!! 

Michael saw a new PT on Friday and should be starting some sessions with her soon. He see’s the orthopedic doc on Thursday, and barring anything unforeseen, we should be able to get the needed script from him then, and can get going with this. I have never had to work so hard getting something dealt with as I have this cramping issue with Michael’s shoulders. I am reminded sometimes how much more frustrating adult care is then pediatrics…..and that is sometimes saying an awful lot. I think we finally have something happening though, and will just be happy when it’s a done deal.

Okay…..dinner is waiting for me, so I am going to go eat and then start packing for tomorrow’s admission. As always, thanks for the thoughts and prayers.

Monday, April 22, 2013

WC Day 22: The Role TV Plays, & Other Stuff


I have a love-hate relationship with TV.

Typically, as soon as Michael leaves in the morning, it’s turned off and isn’t looked at again till evening. Whereas, when he is here, it has to be on all the time…..enough to make me crazy at times.

I honestly have too many other things on my mind most of the time to get the enjoyment, or escape, that TV could provide me. And clearly, I am not one of those people that works/thinks better when there is some kind of background noise going on. It’s one of the greatest hindrances to me writing more…..I need peace and quiet to think, and let’s face it, neither of those two things happen much around here.

This last week has only increased my love-hate relationship with it.

I am grateful for the chance to know what is happening elsewhere, and watched the tragedies in Boston and West unfold, feeling the heartache I know we all did.

At the same time, I was reminded how saturating it can be. We have this insane ability now to be a part of every second of what is going on. It sometimes feels like it’s too much.

It reminded me of last year, immediately following Michael’s accident. I found that I simply could not watch television, and didn’t watch a thing till we were well into rehab. The shows felt frivolous, and the news was often too heavy for me.

Our Houston trips are my other escape. For one week, every other month, I am disconnected from it all…..and I LOVE it. I cherish the time of just not knowing. With no TV readily available, it’s easy to make that escape. I am still connected enough, via FB, etc, that I am going to know if there is something big going on, but for a handful of days, I get to ignore the sometimes overwhelming stream of information coming in.

And I like it.

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Boston & West

Our hearts, thoughts and prayers are with everyone affected by these tragedies.

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The Writing Challenge FAIL

I could make a handful of excuses, all quite valid, but instead I am going to look at what this challenge has done. I am writing again, feeling it even, and that is ultimately what I was hoping this challenge would provide me. I should have known better than to think I would, or could, manage to write daily. There are just too many distractions around here…..very worthy distractions, mind you, but distractions nonetheless. I am happy to share that my last post was number 100, and that I am feeling like the writers block has lifted. Not to give up on this challenge altogether, I am going to try for the rest of the month to get my one post in a day, but that depends on my family cooperating….LOL.

~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Madison Update

I want to share more about how my girls healing is coming along, but it’s kind of interesting and deserves it’s own post, so for now, I  just wanted to share that she is doing well and we are pleased with how things are coming along.

Watch for a post in the coming days about how my girl has a little “piggy” in her now ;-)




Wednesday, April 17, 2013

WC Day 16: Prayers for Boston


I have been watching some of the coverage from the tragic events of yesterday in Boston. These kinds of things always hit hard, but somehow they are harder for me now. The heroism is more glaring too though. 

I know this has been shared all over FB, but I also know it made me stop for a moment and find some peace in this tragedy.


Finding the helpers.

We can only watch so much, but I happened to catch one of the trauma surgeons speaking yesterday.  It took me back, and as I watched him answer questions, I thought of Michael’s trauma surgeons, and how incredible these doctors are.

I don’t know about anyone else, but before Michael’s accident I had no idea this specialty existed…..and I was pretty sure I knew just about every specialty that exists, and that we have seen almost all of them. I had, thankfully, never had the need to meet a trauma surgeon before.

All I can say is WOW. These doctors are amazing. They are on the front lines, making life and death decisions, over and over and over again. For more than a month I watched as they came in each day and pondered my husband and what he needed. Determined what tweaks could and should be made, contemplating all the different factors coming into play, and being prepared to make more changes at a moments notice. I had no idea that there was not a herd of specialists dealing with their own area, but that there was ONE doctor who had to know enough about everything to make split second decisions that could mean the difference between someone living and dying.

They are incredible doctors, doing a job I cannot even imagine.

My thoughts and prayers are with the trauma doctors there in Boston. They are with the ICU nurses caring for those critical patients. They are with each and every person that has been touched by the events of yesterday.


Monday, April 8, 2013

WC Day 8: Moving Past It


I wonder sometimes if you all ever think to yourselves that Michael's accident is mentioned too regularly, that perhaps its time to "move on", or even that I am "milking it" in some way (it's okay if you have), so I thought maybe I should share where I am with it.

I am SO ready for there to be a time when it somehow isn't a part of almost every day, and everything we do.

I am ready for the day when it doesn't somehow enter into conversation regularly; for the day when life events aren't remembered in the BC (before accident) and AC (after accident) mode; for the day when there are not memories I am having to share with Michael because he was unconscious when they happened; for the day when I feel the appropriate amount of concern for the day to day medical stuff here, and not that if it's not "ICU worthy", it's just not that big of a deal; for the day when we get to feel like it isn't necessarily our "defining moment"; and for the day when I am not caught off guard when I feel that catch in my throat as something (anything) triggers an emotional reaction I am not expecting. 

Not because these are all "bad" feelings to have because, Lord knows, they are keeping us grateful. But these things, I feel like, are keeping me from "moving on", what ever moving on is in a case like this.

At the same time, I don't ever want to not share how Michael is, or our story, with those that care or might gain some strength or faith from it; I don't want to ever lose the perspective that getting through this journey has given us; I don't want to forget the memories of what was happening when Michael was unconscious, because there was so much good during that time too; I don't want to ever forget that things could be so much worse, medically speaking, when going through something. Just need to find the balance with it all; I don't want to not be defined by this moment in time....we got through it with optimism, love, and a peace only God could provide, with the help of the amazing "village" we are blessed to be a part of; and I don't even want to not feel the emotions, just maybe not be so caught off guard by them.

How is that for a conundrum!!
PMTRC Spring Fling
Love those faces!!
Trauma is a weird thing. It permeates everything in some way. It took our world, turned it upside down, shook it around, and then dumped us out on the other side. I would have thought the fact that we dumped out on the other side relatively unscathed would have eased some of the emotional impact....and I am sure it has....but apparently there is still a trauma to work through.

Perhaps it's the insecurity that comes when something like this happens. It's like any other worry we all have about our loved ones, the one we keep tucked away because you cannot really live if your worried about someone you love dying. When your faced with one of those fears you have so carefully tucked away, it's difficult to not worry that one of those other ones you've allowed yourself to think only happens "to other people" isn't really something to worry about happening to you. It is, at it's base, facing mortality, really up close and personal.

In talking with the few I have allowed myself to share some of the feelings I am having with, it appears that at least some of these feelings are similar to what they went through when they lost a loved one. On the one hand, I get that "trauma is trauma" and perhaps these are normal (whatever normal is) feelings to have after one.....on the other hand, I did NOT lose Michael, and it bothers me (okay, it pisses me off) that, a) I am having to work my way through this emotional maze, and b) that I am even playing on the same field with others that have lost someone they love. It seems wrong, and even dare I say, presumptuous of me to think I have any right to, for lack of a better word, grieve alongside them.

Maybe these feeling are grieving the loss of innocence, as silly as that sounds. One would think I would have lost all "innocence" a long time ago!! 

The truth is, I don't know. I am working my way through it all as best I can, and having faith that it is going the way it is supposed to. Someday the balance will come. Right? 

The next month or so, as we approach  the one year anniversary of that day, I am anticipating some ups and downs, and more talk about it than anyone probably wants to hear. Forgive me ahead of time please. Skip over it if your ready to move on, and know I completely understand. 

Know though, our gratitude is immeasurable, and pervasive, and I pray, will never, ever lessen. Each moment we have together, every memory made, is priceless....even the difficult ones. 

We are blessed to have you all traveling this journey with us. 

Edited to add:
I realise now that I have written all this out that I am quite possibly projecting my own frustrations with myself onto others, which was not my intent. No one has said a word about how I am, or should be, handling all of this. Logic and emotions don't always go hand in hand, so while logically I know this is an individual journey and there is no right or wrong way to go about it, and that I would never be thinking these things about someone else's journey, emotionally I couldn't help but wonder if you all were as tired of it as I am. I feel better for having said it, for getting it off my chest, but not because it sent a message to someone else, more because it reminded me where I am and where I am headed.

WC Day 7: Defying the Odds



Michael had a CT scan and xrays done on Friday. He is having some issues with his shoulders cramping up, and we are checking to make sure it’s not a nerve issue. The radiologist remembered him and shared that the last time she saw him he was still in a wheelchair and in his c-collar. It’s been a while!!

She went on to share that in her 14 years of doing this she has seen a few with a broken scapula (shoulder blade), but he is the first she has ever seen with both broken. When he shared this with me, it reminded me what I had read about broken scapula’s and I asked him if I had shared why it’s so rare? Unbeknownst to me, it is really tough to break your scapulas, and is almost always associated with a significant blunt force injury. The radiologists don’t see them often because the associated injuries are so severe, not many survive.

Just another reminder of the odds we defied last summer.

Michael said something this weekend I thought illustrated it well…..

He said he sometimes felt like we should be buying a lottery ticket every single day…..and being happy as hell when we didn’t win.

We have already won the best lottery there is to win…

Life.

Friday, February 15, 2013

Go Change the World


Text from Michael

Last month we had the “pleasure” of  driving through Plano to get to our destination.  Driving through Plano, the city Michael grew up in, means hearing stories of Michael’s childhood.  While a quaint idea in theory, the kids and I have heard most of these stories, on more than one occasion. Somehow hearing the same story for the 3rd, 4th or 100th time isn’t quite as entertaining as it was the first time it was shared. Add in that our children are full fledged teenagers, with an attitude that sometimes matches that status, and there is no need to share the groaning I was hearing from the back of the van.  I think this time Abby just flat out, repeatedly, told him to please stop!!

I have to admit, I still get a kick out of some of the stories (I emphasize SOME just so my sweet husband doesn’t get the idea that I love hearing them all, over and over again or anything like that…LOL). And ever so often, I hear one I either hadn’t heard before, or had somehow forgotten. Those are often the gems of the day.


Listening to my husband share his childhood antics, there is one prevailing theme that comes to the forefront……it is AMAZING that my husband survived childhood!!! I am serious.  The close calls are many.  And I do mean MANY. Hearing several of these stories back to back on this particular trip, while at the same time still emotionally dealing with our adventures of last summer, a thought suddenly occurred to me…..

While we have been contemplating the greater purpose my husband has here on this earth to have survived last summer, the truth is, we kind of should have already KNOWN he has some greater purpose for the numerous times the dear man has cheated death in his life time!!  I mean seriously!!

As I said those words out loud, to a car full of agreement from our children (and probably Michael himself), Chance hollered up from the back of the van, “Yeah Dad, you are clearly supposed to CHANGE THE WORLD!!”.

As we laughed, and agreed, Michael grabbed his phone and asked Siri to remind him to “Change the world”.  Now, every day at 9am, his phone alarms and reminds him of his purpose here in this crazy world.

I like it.  Maybe something we ALL should remind ourselves to do as we hurry through our day trying to get it all done.  Just imagine the effect it could have!!


Life here at home has settled into a nice, normal (okay, McNair Normal) pattern.  The life we essentially put on hold last May has returned and we are all just trucking along.  We are so insanely grateful for this, while marveling that it’s even possible, and at the same time, I at least, wonder if we can possibly ever be grateful ENOUGH.

There continue to be a few “firsts” since the accident, with the latest being our first return trip to Houston for the kids to see their doctors since last April.  A trip typically made every other month, all year long, so as you can imagine, we are in serious catch up mode there (and every where else).  We had appointments from Tuesday to Friday and we were able to get 3 tests and 8 appointments taken care of on this trip.  We head back in March for another week.  The appointments resulted in some tweaks to care, but overall it was a positive visit.  More importantly, we got to see some of our friends and family while we were there, and that made the trip down awesome….as it always does.  Our Houston family took good care of us!!!

Hope everyone has a wonderful weekend and remember to……

Saturday, November 17, 2012

6 Months....


1st ride, Nov 15, 2012

As I watched Michael and Abby ride off into the sunset Thursday night, I couldn’t have been more excited. Such a milestone for Michael….for all of us really. We didn’t just survive the last 6 months since the accident, we LIVED, we had hope, we maintained optimism, we recovered, we were patient, and we loved….on each other and the many people in our lives that have stood by us, and at times, carried us.

Thursday was a HUGE milestone in this journey.

When Michael & Abby arrived back 30 or so minutes later, I walked out back and it was then, seeing the look of pure joy and happiness on Michael’s face, that I got choked up and cried a little as I put my arms around him and just stayed there for a while.  They were tears of joy, not of worry or concern, and honestly until that moment, I wasn’t for sure how I was going to feel when this day arrived in that respect.

It’s been asked, more than once, how I was feeling about Michael being back on his bike. Was I scared, worried, fearful, etc..

My logical side didn’t think so…..well, at least that I wasn’t going to be MORE worried or scared than I ever had been. I am not naïve…I have been aware of the risks all along….but in all honesty, I have always been just as worried about him in a car as I have been with him on a bike. The risks exist there too, but it’s tough to really LIVE if you spend your days worrying about things like this.

Emotionally though, I just couldn’t say for sure. Emotions just don’t play by logics rules.


I could tell you with no qualms that being back on the bike is exactly where Michael should be. I have been saying that since the day of the accident…..have advocated for him to have the ability to do so even. How I was going to FEEL though was something that I couldn’t know.

It felt GOOD…..it felt RIGHT…..and my tears were truly tears of joy and relief to finally see this day. Not even a twinge of fear slipped into that moment, and I am grateful for that.


At the six month mark, I can confidently say that we are all thriving. Michael is back at work full time and has been for almost a month now. We have continued to get released by his doctors, one by one, and in December we will see three more for the last time. By the start of the New Year we will be left with only ONE doctor we didn’t have before the accident, his shoulder orthopedic, and we have high hopes of getting rid of him (as nice as he is) early next year. Michael is walking completely unaided, is dealing with minimal pain, and felt really good on the bike Thursday night.  He has reconditioning to do of course, but what better way than on the bike!!

Mito Family Camp 2012
Life here at home is also getting back to “McNair Normal”, which translates as BUSY and FUN!! We have had some amazing adventures as of late, have had the chance to love on a bunch of our friends and family, and we are embracing living life to its fullest every chance we get. I promise some more posts about all that’s been transpiring over here soon. Suffice for now to say, life continues to be exceptional, and we are incredibly blessed.

Getting ready to ride 11/15/12


Thank you ALL for your thoughts, prayers and support. I simply cannot say this enough….


Wednesday, September 19, 2012

{McNair Normal}


Blessedly, 128 days since we “hit the reset button”, we are starting to really feel “normal” again. 

I shared this with a dear friend the other day and his response was so perfect…..”McNair normal maybe…….but at least it’s not “crazy a$$ McNair normal.””

Indeed.

We have officially completed all our initial follow up visits with the doctors Michael now has on his roster, and are starting to do final follow ups with a few of them. I will be glad to take a few off my list!!  Not because we didn’t like every single one of them (we really did amazingly), but because it gets us one step closer to where we were before.  The Vascular surgeon, Neuropsychologist, and ENT have all signed off at this point, and we have at least one more that should sign off by the end of this month. 

Four months since that life changing day and here we sit, feeling pretty dang normal….for us at least.

Today I dropped my precious husband off at work for the first time.  While still a little ways from being ready for full time, that I watched him walk in the door of his building, knowing he was ready and able to go back finally, well, it was amazing. Nothing short of a miracle.

Every once in a while it hits me……something will trigger the realization of where we have been and how far we have come.  How we have defied the odds….over and over again.  How blessed we are that Michael is still with us; that he is not in constant pain; that he is walking and talking; that he has recovered both physically and mentally so quickly; that we have amazing friends and family that have supported us; that he has an incredible employer that has waited for him and done so much more; that the kids are okay (mentally and physically); that we have exceptionally good health insurance;  and the list goes on and on. 








Clearly, there is something more here we are meant to do.















We are in the midst of Mitochondrial Disease Awareness Week, and considering “McNair Normal” is usually quite wrapped up in all things Mito, it too is a return to our normal.  We are all doing our part to spread awareness of the disease that is so very much a part of our lives.  As I have said before, while mito is a part of who we are, it does not define us. However, Chronic Badass is not such a bad way to be defined, huh??!!



Take a moment and learn more…..www.umdf.org   www.mitoaction.org

Tuesday, August 28, 2012

Resurrection


1st time bearing weight on his left leg

While you’re not a miracle, you are about as close to a resurrection as we ever get to see.” –Dr. Dunn, Vascular Surgeon

Leave it to a doctor to minimize the miracle part of this story.  Personally, I think Michael is both a miracle AND as close to a resurrection as most of us will ever be witness to.
Walking with a cane
Michael continues in his rehab over achieving ways. I am marveling daily at how normal our lives are becoming, how typical he is, and how blessed we are to continue to see him return to baseline (and dare I say maybe even a little better).

The Open House was amazing!!  It meant so much to us to have a chance to thank so many of the people that have been traveling this journey with us. It meant so much to have the chance to show my man off, for all to see that he really IS okay, that he really WILL be whole again.
We have another miracle happening here too, as amazing as that is to say…..My Madison is back!! After 4 years of extreme fatigue (a shower would be the most she could manage on any given day as of late), starting with contracting Mono & walking pneumonia, we seem to have found a big part of the problem…..and it could not be simpler to treat.

Because of a lab result that has continued to be abnormal even as we have gotten the other parts of her CBC back in the normal range, our beloved pediatrician pondered whether she might be deficient in Vitamin B12. We decided to try giving her an injection of B12 last Thursday, and I will admit, neither Madison nor I were all that hopeful.

Within 2 hours it was clear the B12 was making a difference…..by 72 hours later we were sitting here in awe.

We didn’t talk about it a lot, but Madison’s fatigue issues had become profound. This wasn’t like someone being tired or low energy, she was at times almost “bed bound” and even on a “good day” it might mean that she could manage a quick outing or a shower, but definitely not both. She was missing out on life, and while we were all making the best of a difficult situation, it’s been heart breaking to watch.

Since Thursday of last week, Madison has had as much, if not more, energy than her siblings. She has been up and moving more than sitting or laying down. She is bubbly and talkative. She is like a whole new person!!! She is a miracle!! B12 is a miracle!!
I am waiting to hear what the plan is to handle this issue long term, and reveling in thinking of all the awesome things we can do as a family this fall…..something I was not feeling good about at all with her, a short week ago…..something I wasn’t even capable to thinking about as a family, even a month ago.  Plans for the fall…..fun things to do…..time with the family as a whole…..how remarkable are those thoughts!! 

Monday, August 20, 2012

Open House

McNair Open House
214-535-7703 (Heather)
There are SO many that we would love the chance to thank in person for all the love, thoughts, prayers and contributions. With that in mind, we are having an open house on this coming Saturday and would love it if you & yours would like to stop by, if even just for 5 minutes, or to hang out for a while. The door is open!!

Tuesday, August 7, 2012

Update - Recovery & Gratitude

Forgive me for sending you to another site for the update, but I am still working on my update for here....soon, I promise.

Recovery & Gratitude - Day 85
http://mcnairfamily.chipin.com/mcnair-family-fund

Sunday, June 10, 2012

26 Days in ICU


Michael & Abby-Urban Assault Ride-Austin, Texas


In all honesty, my brain cannot wrap itself around it being our 26th day in ICU with Michael.  I cannot fathom how that many 24 hour periods of time could possibly have passed, or that there are things happening that we will someday need to tell Michael about, because he wasn’t with us to experience them.  Only two things are clear to me at this time…..Michael will be proud of how the kids and I have gotten through this time, and that he will be overwhelmed by the love and support that has been shown to our family.  Lord knows, there isn’t one without the other……the kids and I would be a mess if it weren’t for the thoughts, prayers and support of so many….it is literally carrying us right now.

Off on a bike/camping adventure
I knew just enough going in, to know that life in ICU is a roller coaster.  I have watched enough friends go through it, and experienced it myself almost 24 years ago the first time Michael was in ICU.  It does little to prepare you, at least for this length of stay.

Michael started out doing well, considering the extent of his injuries. He got through both surgery to repair his hip, as well as to rebuild his left rib cage in the week after the accident. However then contracted both MRSA in his right lung (the one not injured in the accident) along with yeast, and MRSA in his blood.  With this, the decision was made to do a tracheotomy since our time on the ventilator was already extended, and would continue for some time. We battled these infections for the better part of a week, and then finally started to see him turn the corner towards the next steps in this process.
Michael & Madi

Two days into the turn around, another set back, this one more significant than the first (as hard as that is to imagine).  Fevers started spiking, and while it was clear there was a “bug” somewhere, we had to go hunting for it.  Sadly, it was his lungs, both of them now very sick.  What progress we had made in weaning sedation and the ventilator were lost and we went back to square one.  We did so though with the knowledge that he could follow commands when the sedation was reduced enough, and that he has amazing lungs that, even with a significant infection, were able to tolerate a reduction of the vent.  These two tidbits have made losing so much ground at least a little easier to swallow. I can rest easier knowing them.

As of today, while I am not quite able to say we have turned the corner on this latest infection yet, I can say we are moving in that direction.  Each day his lungs look a smidge better on x-ray, his labs move a little more in the right direction, and we are all breathing easier with him.  He is still very sedated at this time, and the ventilator is doing all the work of breathing, but assuming we get through this weekend without any surprises, an attempt to reduce the pressure being given by the vent may start early next week.  Then the process of weaning sedation and the vent begins again.

His injuries from the accident have been healing during all of this.  The small brain bleed and lacerated spleen have healed…..the last of the chest tubes was removed from the left lung yesterday and the lung injuries sustained are healing…..and the many broken bones are slowly but surely doing their thing.

The doctors are still taking things very day by day with my love, and so, for sanity’s sake, am I.  I have some vague ideas of what the next steps in this process will be, but trying to put some time frame on it all continues to just not be possible.  It almost always is in cases like this.  My mantra of taking one day at a time and making it the best it can be is getting a run for its money J


I really am doing okay. I probably analyze myself and my reactions to things more than most, and do so mostly because I find it fascinating how emotions and the mind work.  This experience has been no exception.  My reactions and typical modes of operation have been turned upside down in this case, but not so much in a bad way.  Unlike my usual approach to something medical, I asked few questions and emotionally protected myself from the extent of what we had going on in the beginning.  I just simply could only deal with a little bit at a time.  It was days before I asked about or looked at any labs….actually, it was more than a week into it all.  I minimized my interactions with anyone I thought might have more information to share than I could handle, and slowly worked my way into this whole mess.  The difference for me from chronic care to traumatic is substantial, and far more than I could have ever anticipated.  It has thankfully all just happened without any real thought on my part.  I have been at peace from the beginning with how I was dealing with it, and how I needed to deal with it all has just been so very clear cut, I have yet to question any of it.  All this to say, I am coping.  I did talk with some people that would know this last week, and they confirm I am still sane (always good to know…LOL).

The kids are coping remarkably well too, each in their own way.  They ask a little more about what’s going on each day, and I suspect, like me, they are emotionally protecting themselves till they are ready.  I get it and can totally walk that walk with them.  They are being loved on and entertained (read: distracted) by amazing people that we are so blessed to have in our lives.  And they, like me, are gearing up for the long haul.  The stress of it all is taking a toll on their health, and each one is dealing with some issues right now, but we have an amazing team of doctors that are quite literally at our beck and call, and that makes a huge difference. 

What I know, without question, is that we will all be okay.  We will find a way to accept our “new normals” and we will continue to truly LIVE as we have for so many years before this.

Our gratitude for all the support of so many is immeasurable. There are simply no words worthy of describing it. Our friends and family are amazing!!

A few links to some awesome articles & blog posts about Michael.....


The ChipIn page (in the sidebar) will have regular updates posted if your not a friend on Facebook.


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