tag:blogger.com,1999:blog-3259835718939993072.post2046031725471171601..comments2023-04-04T07:54:41.832-05:00Comments on Our Exceptional Life: Houston Part I: MedicalThe M'shttp://www.blogger.com/profile/04178923523617756793noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-3259835718939993072.post-54610649032636178092011-06-15T05:10:10.206-05:002011-06-15T05:10:10.206-05:00Thanks for the updates. So interesting about the O...Thanks for the updates. So interesting about the O2, I know Ive mentioned this before. I so wish I could see what O2 would do for my boy. Jack can sit in the low 90's during the day and no one seems alarmed about it. I just think with all he's dealing with, we may see some positive changes. But like I said, his team of Drs. dont feel this way about oxygen and Mito patients. I do wish this subject was discussed more.<br /><br />Sorry Madison is struggling some, poor kiddo. Glad that theyre doing well with the O2, and theyre noticing it too! <br /><br />HUGS and prayers for your family always-<br />Heidi & Jack.<br />(wish us luck, Jacks BIPAP comes in the morning, oh man Im so nervous he's going to spit in the eye of that poor resp. therapist!)Heidihttps://www.blogger.com/profile/02241152139861621622noreply@blogger.comtag:blogger.com,1999:blog-3259835718939993072.post-47066457756241887682011-06-14T09:11:52.800-05:002011-06-14T09:11:52.800-05:00Glad the appointments went relatively well! I know...Glad the appointments went relatively well! I know how frustrating it is to sit through one of those EEGs without catching what you are looking for. K had a 48 hour VEEG when she was 3 (I think) and we didn't get what we had come for either.<br /><br />I hope Madison feels better soon! KayTar is finally on the upside of that virus...yesterday was the first day she tolerated normal feeds!Kylahttps://www.blogger.com/profile/03311014761113076785noreply@blogger.com